Wednesday, April 29, 2009

ACL = Welcome Back Party

I just bought a 3 day pass for ACL. This means, obviously, that I have to be back in Austin on October 2nd. The deadline has been set. It is official. This will be my homecoming.

Buy tickets. Celebrate music and my return. See you there.

Friday, March 6, 2009

Kimya Dawson - I Like Giants

When I go for a drive I like to pull off to the side
Of the road, turn out the lights, get out and look up at the sky
And I do this to remind me that I'm really, really tiny
In the grand scheme of things and sometimes this terrifies me

But it's only really scary cause it makes me feel serene
In a way I never thought I'd be because I've never beenS
o grounded, and so humbled, and so one with everything
I am grounded, I am humbled, I am one with everything

Rock and roll is fun but if you ever hear someone
Say you are huge, look at the moon, look at the stars, look at the sun
Look at the ocean and the desert and the mountains and the sky
Say I am just a speck of dust inside a giant's eye
I am just a speck of dust inside a giant's eye

When I saw Geneviève I really liked it when she said
What she said about the giant and the lemmings on the cliff
She said 'I like giants
Especially girl giants
Cause all girls feel too big sometimes
Regardless of their size'

When I go for a drive I like to pull off to the side
Of the road and run and jump into the ocean in my clothes
I'm smaller than a poppyseed inside a great big bowl
And the ocean is a giant that can swallow me whole
So I swim for all salvation and I swim to save my soul
But my soul is just a whisper trapped inside a tornado
So I flip to my back and I float and I sing
I am grounded, I am humbled, I am one with everything
I am grounded, I am humbled, I am one with everything

So I talked to Geneviève and almost cried when she said
That the giant on the cliff wished that she was dead
And the lemmings on the cliff wished that they were dead
So the giant told the lemmings why they ought to live instead
When she thought up all those reasons that they ought to live instead
It made her reconsider all the sad thoughts in her head

So thank you Geneviève, cause you take what is in your head
And you make things that are so beautiful and share them with your friends
We all become important when we realize our goal
Should be to figure out our role within the context of the whole

And yeah, rock and roll is fun, but if you ever hear someone
Say you are huge, look at the moon, look at the stars, look at the sun
Look at the ocean and the desert and the mountains and the sky
Say I am just a speck of dust inside a giant's eye

I am just a speck of dust inside a giant's eye
I am just a speck of dust inside a giant's eye
And I don't wanna make her cry
Cause I like giants

Friday, February 13, 2009

It's not a tumor

It’s hard to take a doctor seriously when all you can hear in your head is Arnold Swarzenagger. It particularly doesn’t help that the above quote is, in my mind, always immediately followed by “who is your daddy and what does he do?” If you don’t know what I am talking about, shame on you. Go rent Kindergarten Cop.

I spent the last three days in the hospital. Yes, an NHS hospital. It was one of the more terrifying experiences of my life. However, I’m glad I endured it as I have now gotten to the bottom of what most people didn’t even know has been ailing for the last 3 or 4 months.

I’ve been in and out of my GP complaining of severe abdominal pain and all the fun things that go with that. I was finally referred to a specialist after I’d lost 10 lbs and y blood work showed some high markers for inflammation. I was meant to wait until the 20th of Feb to see the specialist, but after meeting with my GP on Wednesday morning, she decided I “didn’t look like someone who can wait” and shipped me off to the hospital.

When I arrived, they just sent me to the ER. I wasn’t very excited about this as I had been in that same ER just three days earlier and was turned away after waiting 5 hours since “only my GP could do anything” for me. However, this time I was armed with a letter from my GP which explained the situation and ended with big bold letters that said “DMIT THIS PATIENT URGENTLY FOR FURTHER INVESTIGATION”. The letter seemed to do the trick and I was whisked back to a bed in record time.

The ER doc had a look at me and agreed with my GP’s “you look like shit” assessment and had me sent upstairs to the admittance ward. Let me explain something to you about English hospitals, which I don’t think exists in the States. They have wards. Not rooms. So, instead of being in a room with one other person, you are in one long giant room with about 30 other people. Fortunately, with one of the more embarrassing side effects of sever abdominal pain, you aren’t legally allowed to be on a ward with other people so I got put in my own corner room. Nice, right? Wrong.

The room was dark and musty and smelled of mold. The blinds were basically falling off the window and the paint was chipping off the walls. To top it all off, a jug of the previous patients urine was sitting on the bathroom floor.

A nurse came in and introduced himself as Jeff. Jeff said he was going to have to take my vitals and then ask me a bunch of basic questions as part of being admitted, he just had to go and get his things but would be right back. An hour later, Jeff came back and took my blood pressure. He put the cuff on the same arm as my IV and when he started to pump up the cuff, the blood started to go out my arm and up the IV tube. I pointed this out to Jeff who decided that “maybe [he] should do it on the other arm”. I agreed. After we were done with my blood pressure and temperature, Jeff told me I needed to give a urine sample and do a couple of swabs (nose, throat and unmentionables). Jeff preceded to leave a giant bucket for my urine and several sterile swabs on the table and then left without any further instruction as to how to use them or what to do when I am done. He also never asked me any of the questions he said he needed to ask me.

I managed to figure it al out – kind of, though I am still unsure of exactly how far up my nose I was suppose to cram that thing – and I left all the samples on my bed side table for Jeff.

Next thing I know, some other nurse comes in the room and we have the following conversation:

Nurse: Ms. Smith?
Me: Yes?
Nurse: I need to take a blood sample
Me: They just took some downstairs about an hour ago
long pause
Me: Well, you can have some more.
Nurse: Great, thanks.
Nurse then ties the band around my arm and is about to stab me
Pause
Nurse: What is your date of birth?
Me: March 4th 1985
Nurse: Ok, cool
Nurse almost stabs me.
Pause
Nurse: What is it?
Me: March 4th 1985
Nurse: Are you sure?
Me: Pretty Sure
Nurse: Hold on.
Nurse leaves room and comes back 30 seconds later
Nurse: Are you Amanda Smith?
Me: No, Shelley Smith
Nurse: Right. Never mind then.

A few hours pass and there is no sign of Jeff or any other incompetent nurses. At this point, it’s about 6 pm and they bring me some dinner. They place the dinner directly next to my Urine sample which Jeff has never come back to collect. I ask politely if perhaps someone could take my pee away or, at the very least, move it so I don’t have to eat next to it and the response was “Oh, this will be fine”. It was not until several hours later that someone finally came and got all my samples. I assume they were normal, as I never heard anything about them ever again.

Another hour or so pass and I finally meet the Gastro guy. I sort of lucked out in that the doctor on call just happened to be the gastro specialist and he just happened to be one of the top gastro specialists in the UK. He walked in with a gaggle of junior doctors and proceeded to ask me a bunch of questions and we went through the normal rigamaroo. I really liked him. He was the first competent person I had met since moving into the ward. He told me that he would fit me in for a scope on Friday morning and I would have to stay in the hospital until then.

At about 10:45 – just as I was about to drift off to sleep – some new nurses come in and tell me I have to be moved out on to the ward as someone else needs the room. So they wheel me down the length of this horribly depressing ward to one of the very last beds.

The woman directly across from me was clearly confused/out of it/crazy and had been tied to her bed because she kept trying to run away/break the windows. She screamed for the first 30 minutes I was over there before they gave her something to calm her down.

The woman caddy corner to me had tried to kill herself and was telling one of the nurses how angry she was it didn’t work and that she would try again when they weren’t looking.

The woman next to me was, bless her, obviously unwell. She was having a lot of trouble breathing and did look pretty miserable. They had to keep giving her these nebulizers (the things that poison me) which are really loud and last about 20 minutes at a time. She also had some machine/alarm that kept going off and it would BEEP BEEP BEEP for five minutes or so until a nurse would come and turn it off. But, what really put me over the top was her moaning. She just laid there and made the most horrible sounds a human being could make. The nurses would come around and ask if she was in pain and she would say no, but then she would just keep moaning. If you’re not in pain, shut the hell up! I felt guilty for being mad at her, but I was also not feeling well (which is sort of why we were all in the hospital) and I just wanted to go to sleep and I couldn’t.

I think I finally fell asleep about 1:30 and then was up every couple of hours when the nurses would turn the lights on to deal with the moaner.

The next morning, my mom turned up. She’s not very good at being a long distance mom when there is a crisis – or really, at any time – so she had hopped a plane the night before to come sit with me in the hospital. At first, I thought this was silly, but ultimately I was really glad to have her there.

Thursday was a bit of a better day. They moved me to a nicer/quieter ward and I was given and very nice and attentive nurse named Barry. What made Thursday suck was that at about 2:00pm I had to start “prepping my bowel” for the scope. We don’t need to go into details. We all know how much this sucks. Let’s just say it was a long day/night.

Friday morning, I was woken up bright and early to finish my prep and head down to the scope room. I’ve had a colonoscopy before, when I was about 13, and they totally knocked me out for it so I don’t remember anything about it. This time, they kept me awake in a “twilight” state. There wasn’t anything twilight about it. I was pretty much completely lucid. It was kind of cool, because I could see the screen and my insides, but it also hurt really badly. As it turns out, poking inflamed things from the inside hurts WAY worse then poking them from the outside. After about five minutes of this, they realized I was in pain (probably because I shouted profanity) and they gave me a second dose of the sedative.

Then I was high.

I actually remember more of the procedure than I do of the hour or two after it, which I don’t think is how it’s meant to work. Apparently, the doctor talked to me right afterwards, but I couldn’t tell you what he said if my life depended on it. About four hours later, he came up and re- explained it all to my mom and me.

Though he technically can’t diagnose me until he gets the biopsies back, he told me I have Crohn’s Disease. There is a good article on Wiki, if you’re interested in details, but basically it’s a chronic autoimmune inflammatory disease, which you have to be genetically pre-disposed for.

It’s kind of interesting because they don’t really know a lot about it. They say it’s genetic, but not 100% of Crohn’s patients have the genetic marker. They classify it as autoimmune, but only because you have to suppress the immune system to control it not necessarily because it’s caused by your immune system attacking you. It can present at any time in someone’s life, but most often it’s in your mid-twenties. They don’t know what causes it. They have no known cure for it, but they can control it pretty easily.

When you have a flare up – like I do now – you have to take steroids to reduce the inflammation and suppress your immune system. I’ve been given seven weeks of a pretty serious steroid to take, which means I am going to have super chub face and might possibly go manic depressive (two very unfortunate side effects of steroids). I have to take next week off work just in case they make me go crazy, but I’m sure I’ll be fine on them.

After the steroids, I have to go back to the doc and be tested to make sure I’m not one of the 1 in 300 people who do not produce a certain enzyme. I’ll need that enzyme in order to break down the drug they want to give me as a daily medication. I’ll have to take it, or something like it, every day for the rest of my life, which is kind of weird.

I’ll also need to do another scope after the steroids so that they can judge the extent of the disease. If it’s only in my large bowel, there are far fewer complications. If it is in my small bowel as well it can affect the amount of nutrients I absorb from my food and I might need to take/do some further things to help with that.

If all goes smoothly, it’s a very manageable thing and all I’ll need to do is take regular medication and have yearly check ups. Once I get through the steroids, I should be back to a relative normal and finally start feeling like myself again. All in all, it could have been a lot worse – Arnold could have been wrong.

Wednesday, October 8, 2008

Leaving generations of children obeese and scared of clowns

http://blogofhilarity.com/2008/10/02/the-7-most-completely-bizarre-mcdonalds-commercials/

Follow the link and enjoy a small sample of some of the most fucked up McDonald's Commercials ever produced.

Monday, October 6, 2008

Obama v McCain



These were generated by an automated script using the RSS feeds from Obama’s blog and McCain’s campaign RSS feed. The more often a word is used, the larger it appears. (Click on them to see a larger image.)
Interesting.


Thursday, October 2, 2008

Hello. My name is Shelley, and I'm a knuckle cracker

I crack my knuckles. A lot. To the point that it has become a detriment to myself and those around me. Laura (work colleague/housemate) has bought earplugs. I'm not kidding. In light of such drastic measures, I thought it might be time to try to stop. So I did what all people in the modern age do: I went to the internet for advice.

I found a rather interesting article on Wiki (of course).

There is quite a bit in that article I find note worthy, particularly this: "Truly excessive knuckle popping, especially accompanied by the popping of other joints in the body, can be an early sign of more serious anxiety disorders."

They (Wiki and a few other resources I've read through) seem to be convinced that all nervous habits, such as knuckle cracking, nail biting, hair twirling, etc, all stem from some deeply seeded anxiety and that the easiest way to stop is to pinpoint said anxiety and take steps to reduce it. There is no doubt that I fall under the ‘excessive’ and ‘multiple joint’ categories, but I don’t feel as though I am particularly ‘nervous’. Could it be possible that I have some horrible anxiety disorder and not even know about it? Could it be the left over symptoms of a childhood anxiety disorder that has since resolved itself?

There also seems to be a widely held belief that the best, and perhaps only, way to stop yourself from knuckle cracking is through some basic behavioral techniques.

From the perspective of an addict, I think both of the above theories are crap. Cracking my knuckles feels good. This is why I started doing it. I continue to do it for the same reason, and because it is such an ingrained behavior that I do it subconsciously. Further, if I don't do it, it causes great discomfort in my joints - hence why I don’t/can’t stop. It'd be like telling someone they can only breathe once every 30 seconds. A person could do that, and they could live like that, but it would be uncomfortable and unnatural.

My question is open to anyone, but I am particularly interested in what John and Mike (and any other psych kids out there), think of this. How do I stop cracking my knuckles?

I hold no reservations that I would be able to do this cold turkey. So, as a first step, I have chosen a compromise. There are five different ways I can crack my knuckles. I am restricting myself to one. We'll see how that goes...

This, of course, does not take into account my neck, wrists, back, knees and toes, which I also pop on a regular basis. Baby steps people, baby steps.

Monday, September 22, 2008

breaking the silence

I realized today that I’ve had a couple of rather significant changes in my life over the last three weeks that you folks may or may not be aware of.

First up, I’ve got a new home and, despite any fears and hesitations, it’s absolutely awesome. You may remember my last house – i.e. the box in Camden. I loved it, but the size and plumbing (to put it nicely) left something to be desired. My new house is a two storey, three bedroom flat with two – count them two – bathrooms. I have one of those huge overhead rain shower things. I am still basking in its glory. The whole place is newly remodelled, modern design and furnishings, super spacious and just generally nice. The girls I live with are lovely, hilarious and Australian. They both cook well and often and I take full advantage of this. We get along well, though their love for crappy TV rivals that of Brandan. I thought my previous roommate had trained me fully in the realm of reality TV, but these girls put Brandan’s TV obsessions to shame. It’s almost terrifying. I’ve been watching a lot of Girls of the Playboy Mansion and Run’s House. Go one, judge me. I dare you. I’m really very happy with my current living situation. I’ve got some picture somewhere that I may get around to posting for those that are curious.

Next up, I’ve got a new job. As most of you know, I’ve left the law firm for an architect’s firm. What most of you don’t know is that my boss (from both the law firm and now the new place) resigned last week leaving me in a slightly different position than I ever expected. It really sucks that she’s gone – she was a great boss to have – but the company is now forced to give me a lot more responsibility than they otherwise would have. I’m now directly involved in the rebranding of the firm; from deciding the new name up to designing the look and feel of the new brand. I am also moving a lot of the design and production work in house. I spent last week putting together the interim report which will be published next week. I am a hell of a lot busier now than I ever have been at work, but I think that’s a good thing and I’m kind of enjoying it (for the time being at least). It’s kind of worked out to be a good opportunity for me, even though I miss my lovely boss.

Other news: I’ve got a cold and I miss my car something fierce.

New music obsession: Regina Specktor “That Time” and “Fidelity”

New music disappointment: I heard “Paper Planes” on the radio the other day and, I suspect due to the excessive street violence in London, they have removed the the gun sound effects in the chorus and replaced them with some guy shouting “click click click... ching... BOOM”. It just doesn’t do it for me.